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The Mission of the Christina Capozzi Foundation

Family and friends formed The Christina Capozzi Foundation in December of 1998.  It is a private, tax exempt, non-profit organization pursuant to section 501 (3) of the Internal Revenue Code, and all gifts and donations to the foundation are tax deductible. The Christina Capozzi Foundation was formed to raise funds through events and contributions from corporations, foundations, and friends.  These funds are then used to accelerate first rate, scientific research aimed to support clinical or basic research aimed at :

1) Determining the etiology of, or
2) Optimizing treatment for children with Shone’s Syndrome or other similar forms of acquired structural heart disease with a progressive nature.

Our Objectives

  • To encourage and support excellent laboratory research that will accelerate the discovery of a cure or treatment for Shone’s Syndrome
  • To improve the accurate and timely diagnosis of Shone’s Syndrome patients by increasing public awareness and by educating physicians.
  • To establish and support a clinical research center and information clearinghouse at the top rated, world class, Children’s Hospital of Boston, for the evaluation of Shone's patients by a multidisciplinary team of specialists, and for the accumulation of experience in managing the many facets of Shone’s Syndrome such as multiple levels of left heart obstruction including supravalvar mitral rings, parachute mitral valve, subaortic stenosis, and coarctation.
  • To develop quantitative, objective end points for measurement of the disease’s progression for use in evaluating the efficacy of any drug or intervention.
  • To eventually create and maintain a tissue/ cell bank with objective, neutral oversight and control in order to ensure free access of existing and new researchers to Shone’s Syndrome patient specimens. 

Christina Capozzi Foundation  ::  admin@christinacapozzifoundation.com